Abbey S. Meyers

Former President of the National Organization for Rare Disorders (NORD)

Abbey S. Meyers is the founder and Past President of the National Organization for Rare Disorders (NORD), a coalition of national voluntary health agencies and a clearinghouse for information about little known illnesses. She was also Honorary President of the European Organization for Rare Disorders (EURORDIS)

In the United States Mrs. Meyers served as the consumer representative on the National Commission on Orphan Diseases (1986-89), the NIH Human Gene Therapy Subcommittee (1989-92), the NIH Recombinant DNA Advisory Committee (RAC) (1993-96), the FDA Biological Response Modifiers Committee (1995-99), and the HHS National Human Research Protections Advisory Committee.

Mrs. Meyers is the recipient of the FDA Commissioner's Special Citation for Exceptional Dedication and Achievements on Behalf of All People Afflicted with Rare Disorders (1988), and the Department of Health and Human Services Public Health Service Award for Exceptional Achievements in Orphan Drug Development (1985). Mrs. Meyers holds an Honorary Doctorate from Alfred University in New York. She is considered the primary American consumer advocate responsible for passage of the Orphan Drug Act of 1983. Mrs. Meyers was also instrumental in the development and enactment of several other health related laws including a requirement to provide notice to physicians and patients before a treatment will become unavailable or experience a shortage; the Rare Diseases Orphan Products Development Act of 2002; the Rare Diseases Act of 2002; and she participated in the planning of the European Union's Orphan Drug Regulation.

Throughout her career, Mrs. Meyers has been sitting on many committees, boards and commissions dealing with orphan diseases at the national and international levels. She is also the author of many articles and papers related to this topic and was a frequent speaker at numerous conferences.

Abbey Meyers is a member of the Advisory Board of Medunik USA.